NYC NF Forum 2015 Agenda

NYC NF Forum
Sunday, 11/15/2015
9:30 AM- 3:30 PM
9:30-10:00 am

Registration: Light Continental Breakfast and/or Coffee/Tea

10:00- 10:10 am

Welcome & Introduction
Allan Rubenstein MD
Navigating the NYU Comprehensive NF Center
Celia Engelson and Carole Wind Mitchell
Radiology 101
Jeffrey Allen MD
The 5 W’s of Genetic Testing for Neurofibromatosis: Who, What, When,
Where and Why
Amanda Bergner MS GCG
Bees, Teas & Trees: What we know about alternative therapies in
Neurofibromatosis
Kaleb Yohay MD

10:10- 10:30 am
10:30 – 11:00am
11:00- 11:30 am

11:30- 12:00 am

12:00- 1:00 pm

1:00- 3:30PM

Lunch (networking groups/ chapter recruitment)

Concurrent Sessions moderated by Coordinators Carole Mitchell RN MSN
and Celia Engelson RN MSN FNP

NF1 Session
1:00- 1:40pm

Diagnosing and Treating ADHD in NF 1
Preeti Saigal PhD

1:40- 2:20 pm

Practical Pain Management Approaches in NF
Kaleb Yohay MD

2:20- 2:50 pm

The Future of NF1 treatment: Medical Therapies & Clinical Trials
Jeffrey Allen MD

2:50- 3:30 pm

Expert Panel: Q & A
Allen, Saigal, Anstett, Yohay

NF2 Session
1:00- 1:40 pm

Hearing Restoration
J. Thomas Roland MD

1:40- 2:20 pm

Facial & Speech Remediation
Milan Amin MD and W. Matthew White MD

2:20 -2:50 pm

The Future of NF2 treatment: Medical Therapy and Clinical Trials
Matthias Karajannis MD

2:50 – 3:30 pm

Expert Panel Q & A:
Amin, White, Shaw, Roland, Golfinos, Karajannis, Bergner