Hope Parkinson Program Summer Newsletter
Calendars, special events, notifications and articles of interest to the Parkinson community in southwest Florida
Content
Hope HEALTHCARE SERVICES
July I August I September 2016
Parkinson’s Disease and
Sun Exposure
Caring Community
Summer Ice Cream Socials
Dear Friends of Hope Parkinson Program
“Until there is a cure, there is a community.”
Many of our participants have chosen to live by this powerful phrase - believing that
those who live with Parkinson’s disease are stronger together. All of us at Hope believe
this too.
Our program includes nearly 2,000 vibrant and passionate people living with PD and
their care partners too. Within this close-knit community, participants find empathy,
compassion, motivation, and friendship. This past season, movement classes, support
groups and inspiring events brought members together to share successes and learn
from experiences.
More than 150 people gathered at Lakes Park to raise awareness for our PD Community
at the Walk 4 Hope. Other participants enjoyed a beloved Parkinson Program tradition:
the annual Sunset Cruise. Whether at a large event or a small gathering – we are simply
better together.
Spend the summer among friends. Enjoy a new class, join a support group and stop by
one of our Ice Cream Socials to have some fun!
Warm regards,
Samira K. Beckwith
President and CEO
Hope HealthCare Services
Parkinson’s Disease and Sun Exposure
Dr. Amanda Avila
As the season winds to a close
and summer’s heat, sun and
rain is once again upon us,
I’d like to take a moment to
discuss the risks people with
Parkinson’s disease face with
added sun exposure.
As we already know, PD is a disease of the whole body.
Not only does it affect movements, balance and the GI
tract, but it can also affect the skin. In fact, people with
PD have almost twice the risk of developing skin cancers
including melanoma, the most serious type. Some
scientists even speculate that both PD and melanoma
share a common genetic link – that it is actually a lack
of natural pigmentation that predisposes people to both
skin cancer and Parkinson’s disease. Individuals with PD
are also more susceptible to other skin diseases such as
2
actinic keratosis and seborrheic dermatitis, both of which
cause dry, flaky and sometimes itchy skin.
Good skin care and regular visits to the dermatologist
can go a long way in protecting against and treating these
diseases. Every person with Parkinson’s disease should
see a dermatologist for an annual screening. In the
interim, sunscreen should be used daily and reapplied
frequently, especially while spending time outside. This
is especially important in South Florida, where our
exposure to the sun is so great. Be safe, stay cool and
cover up!
Amanda Avila, MD
Hope Parkinson Program Medical Director
Movement Disorder Specialist, Florida Neurology Group
Offices in Cape Coral 239-574-4242 and
Fort Myers 239-936-3554
A Summer Tradition:
Hope PD Program Ice Cream Socials
Create your own ice cream sundae – complete with all the toppings
– while enjoying fun and fellowship with your friends. Immediately
following the ice cream social, you are invited to watch “Capturing
Grace,” a 50-minute documentary from filmmaker Dave Iverson,
who also directed a film about Parkinson’s for the PBS Frontline
series called “My Father, My Brother and Me.” RSVP is required.
See calendars for details.
Friday, July 15 at 1 p.m.
Hope Cape Community Room
2430 Diplomat Pkwy. E,
Cape Coral
Friday, Aug. 12 at 1 p.m.
Hope HealthPark
Community Room
9470 HealthPark Circle,
Fort Myers
Friday, Sept. 16 at 1 p.m.
Hope Bonita
Community Room
27200 Imperial Parkway,
Bonita Springs
Capturing Grace is a story about two realms. One is occupied by some of the most
acclaimed modern dancers in the world. The other is inhabited by a group of people
with Parkinson’s disease. This film is about what happens when those worlds intersect.
For me, it’s also a personal story. I was diagnosed with Parkinson’s eight years ago, the
third member of my family to receive that news.
— Dave Iverson
Ask a PD Expert: The “Milk Effect”
Kathrynne Holden, MS, RD
Do you use levodopa? If so, have you noticed that when
you drink milk, the medication doesn’t work as well?
Not everyone is sensitive to the protein in cow’s and
goat’s milk, but for those who are, a glass of milk in the
morning can block their levodopa for the rest of the
day. This is because the milk contains an unusually high
amount of the five neutral amino acids that compete
with levodopa for absorption from the small intestine.
Milk has an even higher ratio of these amino acids than
meat, poultry, or fish.
Almond, soy and rice milk alternatives don’t contain
this high ratio of aminos, so they can be safely
substituted. Also, some people find that cheese and
Greek yogurt do not produce as severe an effect; this is
because some of the whey is drawn off in production,
taking with it a large amount of the competing amino
acids.
Do be certain that you are getting enough protein daily
– about one-half gram of protein per pound of body
weight per day. Fatty fish, meat, poultry, cooked dried
beans, nuts and seeds are all good sources of protein.
Kathrynne Holden, MS, Moderator of the National
Parkinson Foundation Forum
“Ask About Nutrition,” and author of “Eat Well, Stay Well
with Parkinson’s Disease,” and “Cook Well, Stay Well with
Parkinson’s Disease.”
www.nutritionucanlivewith.com.
3
Attendees Say
It Best:
SAVE THE DATE
The Davis Phinney Foundation:
The Victory Summit
Friday, March 3, 2017
Charlotte Harbor Event Center
In collaboration with the Hope Parkinson Program, The Davis Phinney
Foundation will host their world-renowned The Victory Summit® symposia
series. This incredible event will take the place of Hope’s annual Spring
Symposium and is expected to bring together as many as 1,000 people
from local communities for a day of inspiration and learning. Including
presentations by internationally and nationally recognized researchers,
clinicians and physical therapists, The Victory Summit symposia deliver upto-date information and practical tools that people with Parkinson’s can use
to live well today. Participation in The Victory Summit is free, and the all-day
event is open to all members of the Parkinson’s community.
“The best gift you can give
yourself and your future?
Attend this conference,
and bring a friend with
Parkinson’s so you can
support each other after you
return home. Very positive,
inspiring, fun and so many
tips to improve your life.”
“This was one of the most
positive and uplifting days
on our 29-year journey with
Parkinson’s.”
This event is free, and pre-registration will open in December 2016.
Fighting Back Against PD
The Rock Steady Boxing program at FYZICAL Fitness
Therapy & Balance Center in Fort Myers includes boxing
drills and conditioning for optimal agility, speed, endurance,
accuracy, hand-eye coordination, footwork and overall
strength. No boxing experience is necessary, and male and
female participants range in age from mid-30s to 80s.
Three class levels are offered:
PD 1: Mon. at 11 a.m.; Wed. at 1:30 p.m.
PD 2: Tue. and Thurs. at 1:30 p.m.
PD 3: Tue. and Thurs. at noon
PD 1 & 2: Sat. at noon
For additional information or to schedule an appointment,
call Julie Shamburger at 239-561-1177. Classes are offered on
a first-come, first-serve basis and are available for purchase
by class or as part of a membership. Remember to consult
your physician before starting any exercise program.
4
Fall Forum:
Save the Date
Friday, October 7
from 10 a.m. to noon
Crowne Plaza Fort Myers
at Bell Tower Shops
Dr. Amanda Avila, Hope Parkinson
Program Medical Director, will present
“PD Medical Treatments: Fact vs. Fiction.”
Patricia Radford, Senior Associate
Director, Advancement from The Michael
J. Fox Foundation for Parkinson’s Research,
will present an overview on the current
state of Parkinson’s research and share
exciting updates from the Foundation.
Seating is limited, and pre-registration will
be required. Online registration will open
Aug. 26. Check hopeparkinson.org/events
for more information.
Local Resources for Parkinson’s Disease
Contact the following organizations for more details and current programming schedules.
Educational and Navigational Support
Area Agency on Aging for Southwest Florida
Aging and Disability Resource Center
15201 N. Cleveland Ave., North Fort Myers
Helpline 866-413-5337; www.aaaswfl.org
LMHS SHARE Club
Senior Health & Wellness program serving residents of
Southwest Florida ages 50 and older.
239-424-3765;
[email protected]
United Way-211
Helps people navigate their way through the maze of
health and social services agencies by providing the most
adequate resources for the client’s situation and promoting
prevention and self-sufficiency by giving clients easy access
to services. www.unitedwaylee.org
Lee County Parks & Recreation Pools
San Carlos, Lehigh Acres, Fort Myers and Pine Island
239-533-7275
Dubin Resource Center
Dementia Safety Program, dementia caregiver education
and support groups.
239-437-3007; www.alzheimersswfl.org
Cape Wellness Center LMHS
PD exercise and fitness center; 239-424-3225
Chronic Disease Self-Management Workshop
“It’s All About You”
239-424-3122
Good Wheels, Inc.
Provides transportation for the Transportation
Disadvantaged in Lee, Hendry and Glades counties and
serves the community as the major transportation provider
for Medicaid in Lee, Hendry and Glades counties.
239-768-2900; 1-800-741-1570; www.goodwheels.org
Exercise Health & Wellness
Bonita YMCA Pedaling for Parkinson’s program
Marla Ramsey; 239-221-7560 x116
Lehigh Senior Citizens Center
Weekly Tai Chi Balance Classes
219 Plaza Drive, Lehigh Acres
239-369-5355; [email protected]
Punta Gorda PD Exercise Classes
Contact Pete Gaylord at [email protected]
FYZICAL FITNESS
Rock Steady Boxing Gym
13010 Metro Pkwy., Fort Myers; 239-561-1177
Medical Services
LMHS PD Rehabilitation Service Team
FREE Summer Parkinson Rehab Screenings:
July 30 and Sept. 24. Pre-registration required.
Contact Mary Jo Haughey, SLP; 239-434-4962
FYZICAL Therapy & Balance Centers
239-561-1177; www.fyzical.com/fort-myers
Hope at Home
Private Duty Care, Medicare Home Health, Palliative and
Hospice Care
239-482-HOPE; www.HopeHCS.org
Mind & Brain Care
Dr. Mabel Lopez, Neuropsychologist
6442 Commerce Park Drive #1, Fort Myers
239-768-6500; www.mabc.co
National Resources
NPF National Parkinson Foundation
PD Help Line; Patient Education Booklets;
Aware In Care Kits; “Ask the Doctor Forum”
www.parkinson.org
800-473-4636
MJ Fox Foundation
PD Research Opportunities
www.michaeljfoxfoundation.org
UF Center for Movement Disorders
3450 Hull Rd., Gainesville, 32607
www.movementdisorders.ufhealth.org
352-265-8408
The Davis Phinney Foundation
www.davisphinneyfoundation.org
PDF Parkinson Disease Foundation
www.pdf.org
5
Caring Community
2016 Parkinson Cruise
6
Inaugural Walk 4 Hope:
Raising Awareness for Hope Parkinson Program
With special thanks to …
LLC Speech-Language Therapy
OT Tip of the Month
To decrease tremors that make eating a challenge,
try using a 2.5-pound cuff weight on your
wrist while you are eating. Cuff weights can be
purchased at retail stores for approximately $5.
Using weighted utensils may also make it easier
to reach the mouth. A variety of styles, in both
plastic and stainless steel, can be purchased
online from www.Amazon.com or
www.SammonsPreston.com starting around $12.
7
Capturing Grace shows how the
power of dance can ease PD
symptoms.
The PD Dance Clinic was
led by University of Florida
graduate student Ashley
LeBlanc.
At the movie premiere, Hope
volunteers served refreshments
with old-fashioned style.
Hope Parkinson Program Calendar Details
All events require pre-registration.
Please call 239-985-7727
or email [email protected].
The latest programming information can
be found at www.Hopeparkinson.org.
Call for details before attending your first
class. Schedules are subject to change.
eve n t
L O C AT I O N S :
BONITA SPRINGS
• Hope Bonita Springs Community Room: 27200 Imperial Parkway
• The Terraces: 26455 S Tamiami Trail *
CAPE CORAL
• Cape Coral Wellness Center: 609 SE 13th Court
• HOPE Cape Community Room: 2430 Diplomat Parkway E.
C O L O R K E Y:
ESTERO
Support Groups: Blue
• Estero Recreation Center: 9200 Corkscrew Palms Blvd.**
Exercise Classes: Black
• Coconut Point LMHS “ Healthy Life Center”
23190 Fashion Drive, Suite 105
Educational Events: Red
Social Events: Green
FORT MYERS
• Cypress Cove “Edison Room”: 10500 Cypress Cove Drive
• Brookdale Cypress Lake: 7460 Lake Breeze Drive
• FUMC-Faith United Methodist Church: 15690 McGregor Blvd.
* Provided in partnership with PASFI.
** Entry to Estero and North
Ft. Myers Lee County Parks and
Recreation facilities requires you present a
Membership Card that can be purchased
at the facility prior to attending your
first class. Cost is $10 for a lifetime
membership.
8
• Hope HealthPark Community Rooms: 9470 HealthPark Circle
• Shell Point King’s Crown Meeting Room: 14701 Kings Crown Way
LABELLE
• Hope Connections: 475 East Cowboy Way
NORTH FORT MYERS
• Recreation Center: 2000 North Recreation Park Way **
Punta Gorda
• Punta Gorda Isles Civic Association Room 4: 2001 Shreve Street
Led by Pete and Kelly Gaylord. Call 941-637-6418.
9
Exercise
Hope Cape Tai Chi 3 pm
PD Support Group
Shell Point King’s Crown
10:15 am
Exercise
Hope Cape Tai Chi 3 pm
Happy
Fourth of July!
No Classes
Community Education Event
Finding Hope For
Living Well With PD 1 pm
Lehigh Acres Library
RSVP by 7/20. 239-985-7727
Exercise
25Hope Cape
Tai Chi 3 pm
18
11
4
Monday
PD Support Group
Hope LaBelle 1 pm
Exercise
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
Exercise
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
26
19
12
5
Tuesday
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
27
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
20
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
13
Caregiver Support Group
FUMC 10 am
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
6
Wednesday
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
28
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
21
PD Support Group
Brookdale Cypress Lake 11:30 am
Cape Wellness Ctr. 2 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
14
Caregiver Support Group
Cape Wellness Ctr. 1 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
7
Thursday
J u ly 2 0 1 6
Summer
Ice Cream Social
& Movie Event
Ladies PD Group
Hope HealthPark-1 pm
29
Punta Gorda Support Groups
PWP & Care Partners
Meet separately same bldg.
Punta Gorda-10:30 am
22
Hope Cape Com. Rm. 1 pm
RSVP by 7/8
239-985-7727
15
8
Friday
29
22
15
8
1
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Exercise
Hope Cape Tai Chi 3 pm
Exercise
Hope Cape Tai Chi 3 pm
PD Support Group
Estero Rec. Ctr. 12 Noon
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
PD Support Group
Shell Point King’s Crown
10:15 am
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Monday
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
30
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
PD Support Groups
N. Ft. Myers 12 Noon
(Bring brown bag lunch)
N. Ft. Myers 11 am
Exercise
23 Bonita-Terraces
11 am
16
9
2
Tuesday
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
No Tai Chi today only
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
31
Exercise
FTM-FUMC 10:00 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
24
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk.Tai Chi 2:30 pm
17
10
Caregiver Support Group
FUMC 10 am
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
Wednesday
3
Exercise
Ladies PD Group
Hope HealthPark 1 pm
Hope HealthPark 1 pm
RSVP by 8/5
239-985-7727
Summer
Ice Cream Social
& Movie Event
Punta Gorda Support Groups
PWP & Care Partners
Meet separately same bldg.
Punta Gorda 10:30 am
26
19
12
5
Friday
REMINDER:
ONLINE REGISTRATION FOR FALL FORUM
OPENS FRI. 8/26
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
25
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
18
PD Support Group
Brookdale Cypress Lake 11:30 am
Cape Wellness Ctr. 2 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
11
Caregiver Support Group
Cape Wellness Ctr. 1 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
4
Thursday
au g u s t 2 0 1 6
10
11
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Community Education Event
Finding Hope For
Living Well With PD 1 pm
ESTERO-Coconut Point
RSVP by 7/20 239-985-7727
Exercise
26 Hope Cape
Tai Chi 3 pm
19
PD Support Group
Shell Point King’s Crown 10:15 am
Estero Rec. Ctr. 12 Noon
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Labor Day
No Classes
12
5
Monday
PD Support Group
N. Ft. Myers 12 Noon
(Bring Brown Bag Lunch)
Hope LaBelle 1 pm
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Exercise
27 Bonita-Terraces
11 am
20
13
6
Tuesday
Exercise
FTM-FUMC 10:00 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
28
Exercise
FTM-FUMC 10:00 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30
21
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
14
Caregiver Support Group
FUMC-10:00 am
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
7
Wednesday
PD Support Group
Brookdale/Lakes 11:30 am
Cape Wellness 2 pm
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Caregiver Support Group
Cape Wellness Ctr. 1 pm
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
29
Exercise
N. Ft. Myers 11 am
Bonita-Terraces 11 am
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
22
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
15
8
1
Thursday
Summer
Ice Cream Social
& Movie Event
Ladies PD Group
Hope HealthPark 1 pm
30
Punta Gorda Support Groups
PWP & Care Partners
Meet separately same bldg.
Punta Gorda 10:30 am
23
Hope Bonita Com. Rm. 1 pm
RSVP by 9/9
239-985-7727
16
9
2
Friday
september 2016
Join the
Hope Parkinson
Program
Hope Hospice and Community Services, Inc.
9470 HealthPark Circle
Fort Myers, FL 33908
Prsrt Std
US Postage
PAID
Permit #589
Ft. Myers, FL
There is no cost to register and becoming a
participant is simple. Visit HopeParkinson.
org/Join and follow the easy-to-understand
instructions. Registration by phone is also
available at 239-985-7727.
Ways to Give Back
SPREAD THE WORD: Share this newsletter
with friends, relatives, coworkers and
neighbors.
VISIT OUR RESALE STORES: Donate or shop
at Hope Chest, North Fort Myers, 239-6521114 and Hope Chest at the Crossings, Bonita
Springs, 239-444-1100.
VOLUNTEER: Lead an exercise class or help
with office work.
DONATE: Send a check to
9470 HealthPark Circle
Fort Myers, FL 33908
Or make a secure online donation at
www.hopehcs.org
*Special Note: When donating online please
indicate Parkinson Program in the comments
field.
ORGANIZE: Design your own event to benefit
our program. Call us at
239-985-7727 for details.
Please shop at Amazon Smile, and choose
us as your charity!
Amazon will make a donation to our
organization. Just select name Hope Hospice
and Community Services, Inc.
Sometimes love
needs a helping hand.
Home Health Care
Private Duty Nursing
They’re relying on you. And you may
need some help. At Hope, we understand you
Medication
have many roles in your family - and that few are as
Management
Personal Care important as your role of caregiver. We can support
Assistance all you do with our comforting care - coordinating
Proud Partner Agency
239-985-7727
800-859-0314
HopeParkinson.org
The Hope Parkinson Program is
provided by Hope HealthCare Services,
a not-for-profit, 501 (c)(3) status
community-based agency.
Caregiver Support medical needs, explaining options and providing
Family Education emotional guidance for you and your loved ones.
Palliative Care Together, we can make each day the best possible.
Expert Hospice Care
Let Hope be there for you.
Bereavement
Counseling
hopehcs.org • 239.482.4673
July I August I September 2016
Parkinson’s Disease and
Sun Exposure
Caring Community
Summer Ice Cream Socials
Dear Friends of Hope Parkinson Program
“Until there is a cure, there is a community.”
Many of our participants have chosen to live by this powerful phrase - believing that
those who live with Parkinson’s disease are stronger together. All of us at Hope believe
this too.
Our program includes nearly 2,000 vibrant and passionate people living with PD and
their care partners too. Within this close-knit community, participants find empathy,
compassion, motivation, and friendship. This past season, movement classes, support
groups and inspiring events brought members together to share successes and learn
from experiences.
More than 150 people gathered at Lakes Park to raise awareness for our PD Community
at the Walk 4 Hope. Other participants enjoyed a beloved Parkinson Program tradition:
the annual Sunset Cruise. Whether at a large event or a small gathering – we are simply
better together.
Spend the summer among friends. Enjoy a new class, join a support group and stop by
one of our Ice Cream Socials to have some fun!
Warm regards,
Samira K. Beckwith
President and CEO
Hope HealthCare Services
Parkinson’s Disease and Sun Exposure
Dr. Amanda Avila
As the season winds to a close
and summer’s heat, sun and
rain is once again upon us,
I’d like to take a moment to
discuss the risks people with
Parkinson’s disease face with
added sun exposure.
As we already know, PD is a disease of the whole body.
Not only does it affect movements, balance and the GI
tract, but it can also affect the skin. In fact, people with
PD have almost twice the risk of developing skin cancers
including melanoma, the most serious type. Some
scientists even speculate that both PD and melanoma
share a common genetic link – that it is actually a lack
of natural pigmentation that predisposes people to both
skin cancer and Parkinson’s disease. Individuals with PD
are also more susceptible to other skin diseases such as
2
actinic keratosis and seborrheic dermatitis, both of which
cause dry, flaky and sometimes itchy skin.
Good skin care and regular visits to the dermatologist
can go a long way in protecting against and treating these
diseases. Every person with Parkinson’s disease should
see a dermatologist for an annual screening. In the
interim, sunscreen should be used daily and reapplied
frequently, especially while spending time outside. This
is especially important in South Florida, where our
exposure to the sun is so great. Be safe, stay cool and
cover up!
Amanda Avila, MD
Hope Parkinson Program Medical Director
Movement Disorder Specialist, Florida Neurology Group
Offices in Cape Coral 239-574-4242 and
Fort Myers 239-936-3554
A Summer Tradition:
Hope PD Program Ice Cream Socials
Create your own ice cream sundae – complete with all the toppings
– while enjoying fun and fellowship with your friends. Immediately
following the ice cream social, you are invited to watch “Capturing
Grace,” a 50-minute documentary from filmmaker Dave Iverson,
who also directed a film about Parkinson’s for the PBS Frontline
series called “My Father, My Brother and Me.” RSVP is required.
See calendars for details.
Friday, July 15 at 1 p.m.
Hope Cape Community Room
2430 Diplomat Pkwy. E,
Cape Coral
Friday, Aug. 12 at 1 p.m.
Hope HealthPark
Community Room
9470 HealthPark Circle,
Fort Myers
Friday, Sept. 16 at 1 p.m.
Hope Bonita
Community Room
27200 Imperial Parkway,
Bonita Springs
Capturing Grace is a story about two realms. One is occupied by some of the most
acclaimed modern dancers in the world. The other is inhabited by a group of people
with Parkinson’s disease. This film is about what happens when those worlds intersect.
For me, it’s also a personal story. I was diagnosed with Parkinson’s eight years ago, the
third member of my family to receive that news.
— Dave Iverson
Ask a PD Expert: The “Milk Effect”
Kathrynne Holden, MS, RD
Do you use levodopa? If so, have you noticed that when
you drink milk, the medication doesn’t work as well?
Not everyone is sensitive to the protein in cow’s and
goat’s milk, but for those who are, a glass of milk in the
morning can block their levodopa for the rest of the
day. This is because the milk contains an unusually high
amount of the five neutral amino acids that compete
with levodopa for absorption from the small intestine.
Milk has an even higher ratio of these amino acids than
meat, poultry, or fish.
Almond, soy and rice milk alternatives don’t contain
this high ratio of aminos, so they can be safely
substituted. Also, some people find that cheese and
Greek yogurt do not produce as severe an effect; this is
because some of the whey is drawn off in production,
taking with it a large amount of the competing amino
acids.
Do be certain that you are getting enough protein daily
– about one-half gram of protein per pound of body
weight per day. Fatty fish, meat, poultry, cooked dried
beans, nuts and seeds are all good sources of protein.
Kathrynne Holden, MS, Moderator of the National
Parkinson Foundation Forum
“Ask About Nutrition,” and author of “Eat Well, Stay Well
with Parkinson’s Disease,” and “Cook Well, Stay Well with
Parkinson’s Disease.”
www.nutritionucanlivewith.com.
3
Attendees Say
It Best:
SAVE THE DATE
The Davis Phinney Foundation:
The Victory Summit
Friday, March 3, 2017
Charlotte Harbor Event Center
In collaboration with the Hope Parkinson Program, The Davis Phinney
Foundation will host their world-renowned The Victory Summit® symposia
series. This incredible event will take the place of Hope’s annual Spring
Symposium and is expected to bring together as many as 1,000 people
from local communities for a day of inspiration and learning. Including
presentations by internationally and nationally recognized researchers,
clinicians and physical therapists, The Victory Summit symposia deliver upto-date information and practical tools that people with Parkinson’s can use
to live well today. Participation in The Victory Summit is free, and the all-day
event is open to all members of the Parkinson’s community.
“The best gift you can give
yourself and your future?
Attend this conference,
and bring a friend with
Parkinson’s so you can
support each other after you
return home. Very positive,
inspiring, fun and so many
tips to improve your life.”
“This was one of the most
positive and uplifting days
on our 29-year journey with
Parkinson’s.”
This event is free, and pre-registration will open in December 2016.
Fighting Back Against PD
The Rock Steady Boxing program at FYZICAL Fitness
Therapy & Balance Center in Fort Myers includes boxing
drills and conditioning for optimal agility, speed, endurance,
accuracy, hand-eye coordination, footwork and overall
strength. No boxing experience is necessary, and male and
female participants range in age from mid-30s to 80s.
Three class levels are offered:
PD 1: Mon. at 11 a.m.; Wed. at 1:30 p.m.
PD 2: Tue. and Thurs. at 1:30 p.m.
PD 3: Tue. and Thurs. at noon
PD 1 & 2: Sat. at noon
For additional information or to schedule an appointment,
call Julie Shamburger at 239-561-1177. Classes are offered on
a first-come, first-serve basis and are available for purchase
by class or as part of a membership. Remember to consult
your physician before starting any exercise program.
4
Fall Forum:
Save the Date
Friday, October 7
from 10 a.m. to noon
Crowne Plaza Fort Myers
at Bell Tower Shops
Dr. Amanda Avila, Hope Parkinson
Program Medical Director, will present
“PD Medical Treatments: Fact vs. Fiction.”
Patricia Radford, Senior Associate
Director, Advancement from The Michael
J. Fox Foundation for Parkinson’s Research,
will present an overview on the current
state of Parkinson’s research and share
exciting updates from the Foundation.
Seating is limited, and pre-registration will
be required. Online registration will open
Aug. 26. Check hopeparkinson.org/events
for more information.
Local Resources for Parkinson’s Disease
Contact the following organizations for more details and current programming schedules.
Educational and Navigational Support
Area Agency on Aging for Southwest Florida
Aging and Disability Resource Center
15201 N. Cleveland Ave., North Fort Myers
Helpline 866-413-5337; www.aaaswfl.org
LMHS SHARE Club
Senior Health & Wellness program serving residents of
Southwest Florida ages 50 and older.
239-424-3765;
[email protected]
United Way-211
Helps people navigate their way through the maze of
health and social services agencies by providing the most
adequate resources for the client’s situation and promoting
prevention and self-sufficiency by giving clients easy access
to services. www.unitedwaylee.org
Lee County Parks & Recreation Pools
San Carlos, Lehigh Acres, Fort Myers and Pine Island
239-533-7275
Dubin Resource Center
Dementia Safety Program, dementia caregiver education
and support groups.
239-437-3007; www.alzheimersswfl.org
Cape Wellness Center LMHS
PD exercise and fitness center; 239-424-3225
Chronic Disease Self-Management Workshop
“It’s All About You”
239-424-3122
Good Wheels, Inc.
Provides transportation for the Transportation
Disadvantaged in Lee, Hendry and Glades counties and
serves the community as the major transportation provider
for Medicaid in Lee, Hendry and Glades counties.
239-768-2900; 1-800-741-1570; www.goodwheels.org
Exercise Health & Wellness
Bonita YMCA Pedaling for Parkinson’s program
Marla Ramsey; 239-221-7560 x116
Lehigh Senior Citizens Center
Weekly Tai Chi Balance Classes
219 Plaza Drive, Lehigh Acres
239-369-5355; [email protected]
Punta Gorda PD Exercise Classes
Contact Pete Gaylord at [email protected]
FYZICAL FITNESS
Rock Steady Boxing Gym
13010 Metro Pkwy., Fort Myers; 239-561-1177
Medical Services
LMHS PD Rehabilitation Service Team
FREE Summer Parkinson Rehab Screenings:
July 30 and Sept. 24. Pre-registration required.
Contact Mary Jo Haughey, SLP; 239-434-4962
FYZICAL Therapy & Balance Centers
239-561-1177; www.fyzical.com/fort-myers
Hope at Home
Private Duty Care, Medicare Home Health, Palliative and
Hospice Care
239-482-HOPE; www.HopeHCS.org
Mind & Brain Care
Dr. Mabel Lopez, Neuropsychologist
6442 Commerce Park Drive #1, Fort Myers
239-768-6500; www.mabc.co
National Resources
NPF National Parkinson Foundation
PD Help Line; Patient Education Booklets;
Aware In Care Kits; “Ask the Doctor Forum”
www.parkinson.org
800-473-4636
MJ Fox Foundation
PD Research Opportunities
www.michaeljfoxfoundation.org
UF Center for Movement Disorders
3450 Hull Rd., Gainesville, 32607
www.movementdisorders.ufhealth.org
352-265-8408
The Davis Phinney Foundation
www.davisphinneyfoundation.org
PDF Parkinson Disease Foundation
www.pdf.org
5
Caring Community
2016 Parkinson Cruise
6
Inaugural Walk 4 Hope:
Raising Awareness for Hope Parkinson Program
With special thanks to …
LLC Speech-Language Therapy
OT Tip of the Month
To decrease tremors that make eating a challenge,
try using a 2.5-pound cuff weight on your
wrist while you are eating. Cuff weights can be
purchased at retail stores for approximately $5.
Using weighted utensils may also make it easier
to reach the mouth. A variety of styles, in both
plastic and stainless steel, can be purchased
online from www.Amazon.com or
www.SammonsPreston.com starting around $12.
7
Capturing Grace shows how the
power of dance can ease PD
symptoms.
The PD Dance Clinic was
led by University of Florida
graduate student Ashley
LeBlanc.
At the movie premiere, Hope
volunteers served refreshments
with old-fashioned style.
Hope Parkinson Program Calendar Details
All events require pre-registration.
Please call 239-985-7727
or email [email protected].
The latest programming information can
be found at www.Hopeparkinson.org.
Call for details before attending your first
class. Schedules are subject to change.
eve n t
L O C AT I O N S :
BONITA SPRINGS
• Hope Bonita Springs Community Room: 27200 Imperial Parkway
• The Terraces: 26455 S Tamiami Trail *
CAPE CORAL
• Cape Coral Wellness Center: 609 SE 13th Court
• HOPE Cape Community Room: 2430 Diplomat Parkway E.
C O L O R K E Y:
ESTERO
Support Groups: Blue
• Estero Recreation Center: 9200 Corkscrew Palms Blvd.**
Exercise Classes: Black
• Coconut Point LMHS “ Healthy Life Center”
23190 Fashion Drive, Suite 105
Educational Events: Red
Social Events: Green
FORT MYERS
• Cypress Cove “Edison Room”: 10500 Cypress Cove Drive
• Brookdale Cypress Lake: 7460 Lake Breeze Drive
• FUMC-Faith United Methodist Church: 15690 McGregor Blvd.
* Provided in partnership with PASFI.
** Entry to Estero and North
Ft. Myers Lee County Parks and
Recreation facilities requires you present a
Membership Card that can be purchased
at the facility prior to attending your
first class. Cost is $10 for a lifetime
membership.
8
• Hope HealthPark Community Rooms: 9470 HealthPark Circle
• Shell Point King’s Crown Meeting Room: 14701 Kings Crown Way
LABELLE
• Hope Connections: 475 East Cowboy Way
NORTH FORT MYERS
• Recreation Center: 2000 North Recreation Park Way **
Punta Gorda
• Punta Gorda Isles Civic Association Room 4: 2001 Shreve Street
Led by Pete and Kelly Gaylord. Call 941-637-6418.
9
Exercise
Hope Cape Tai Chi 3 pm
PD Support Group
Shell Point King’s Crown
10:15 am
Exercise
Hope Cape Tai Chi 3 pm
Happy
Fourth of July!
No Classes
Community Education Event
Finding Hope For
Living Well With PD 1 pm
Lehigh Acres Library
RSVP by 7/20. 239-985-7727
Exercise
25Hope Cape
Tai Chi 3 pm
18
11
4
Monday
PD Support Group
Hope LaBelle 1 pm
Exercise
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
Exercise
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
26
19
12
5
Tuesday
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
27
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
20
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
13
Caregiver Support Group
FUMC 10 am
Exercise
FTM-FUMC 10 am
Hope HealthPk.Tai Chi 2:30 pm
6
Wednesday
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
28
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
21
PD Support Group
Brookdale Cypress Lake 11:30 am
Cape Wellness Ctr. 2 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
14
Caregiver Support Group
Cape Wellness Ctr. 1 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
7
Thursday
J u ly 2 0 1 6
Summer
Ice Cream Social
& Movie Event
Ladies PD Group
Hope HealthPark-1 pm
29
Punta Gorda Support Groups
PWP & Care Partners
Meet separately same bldg.
Punta Gorda-10:30 am
22
Hope Cape Com. Rm. 1 pm
RSVP by 7/8
239-985-7727
15
8
Friday
29
22
15
8
1
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Exercise
Hope Cape Tai Chi 3 pm
Exercise
Hope Cape Tai Chi 3 pm
PD Support Group
Estero Rec. Ctr. 12 Noon
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
PD Support Group
Shell Point King’s Crown
10:15 am
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Monday
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
30
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
PD Support Groups
N. Ft. Myers 12 Noon
(Bring brown bag lunch)
N. Ft. Myers 11 am
Exercise
23 Bonita-Terraces
11 am
16
9
2
Tuesday
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
No Tai Chi today only
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
31
Exercise
FTM-FUMC 10:00 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
24
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk.Tai Chi 2:30 pm
17
10
Caregiver Support Group
FUMC 10 am
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
Wednesday
3
Exercise
Ladies PD Group
Hope HealthPark 1 pm
Hope HealthPark 1 pm
RSVP by 8/5
239-985-7727
Summer
Ice Cream Social
& Movie Event
Punta Gorda Support Groups
PWP & Care Partners
Meet separately same bldg.
Punta Gorda 10:30 am
26
19
12
5
Friday
REMINDER:
ONLINE REGISTRATION FOR FALL FORUM
OPENS FRI. 8/26
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
25
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
18
PD Support Group
Brookdale Cypress Lake 11:30 am
Cape Wellness Ctr. 2 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
11
Caregiver Support Group
Cape Wellness Ctr. 1 pm
Exercise
Brookdale Cypress Lake 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
4
Thursday
au g u s t 2 0 1 6
10
11
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Community Education Event
Finding Hope For
Living Well With PD 1 pm
ESTERO-Coconut Point
RSVP by 7/20 239-985-7727
Exercise
26 Hope Cape
Tai Chi 3 pm
19
PD Support Group
Shell Point King’s Crown 10:15 am
Estero Rec. Ctr. 12 Noon
Exercise
Estero Rec. Ctr. 11 am
Hope Cape Tai Chi 3 pm
Labor Day
No Classes
12
5
Monday
PD Support Group
N. Ft. Myers 12 Noon
(Bring Brown Bag Lunch)
Hope LaBelle 1 pm
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
PD Support Group
Hope LaBelle 1 pm
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Exercise
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Exercise
27 Bonita-Terraces
11 am
20
13
6
Tuesday
Exercise
FTM-FUMC 10:00 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
28
Exercise
FTM-FUMC 10:00 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30
21
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
14
Caregiver Support Group
FUMC-10:00 am
Exercise
FTM-FUMC 10 am
Estero Rec. Ctr. 11 am
Hope HealthPk. Tai Chi 2:30 pm
7
Wednesday
PD Support Group
Brookdale/Lakes 11:30 am
Cape Wellness 2 pm
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
Caregiver Support Group
Cape Wellness Ctr. 1 pm
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
29
Exercise
N. Ft. Myers 11 am
Bonita-Terraces 11 am
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
22
Exercise
Brookdale/Lakes 10:30 am
Bonita-Terraces 11 am
N. Ft. Myers 11 am
15
8
1
Thursday
Summer
Ice Cream Social
& Movie Event
Ladies PD Group
Hope HealthPark 1 pm
30
Punta Gorda Support Groups
PWP & Care Partners
Meet separately same bldg.
Punta Gorda 10:30 am
23
Hope Bonita Com. Rm. 1 pm
RSVP by 9/9
239-985-7727
16
9
2
Friday
september 2016
Join the
Hope Parkinson
Program
Hope Hospice and Community Services, Inc.
9470 HealthPark Circle
Fort Myers, FL 33908
Prsrt Std
US Postage
PAID
Permit #589
Ft. Myers, FL
There is no cost to register and becoming a
participant is simple. Visit HopeParkinson.
org/Join and follow the easy-to-understand
instructions. Registration by phone is also
available at 239-985-7727.
Ways to Give Back
SPREAD THE WORD: Share this newsletter
with friends, relatives, coworkers and
neighbors.
VISIT OUR RESALE STORES: Donate or shop
at Hope Chest, North Fort Myers, 239-6521114 and Hope Chest at the Crossings, Bonita
Springs, 239-444-1100.
VOLUNTEER: Lead an exercise class or help
with office work.
DONATE: Send a check to
9470 HealthPark Circle
Fort Myers, FL 33908
Or make a secure online donation at
www.hopehcs.org
*Special Note: When donating online please
indicate Parkinson Program in the comments
field.
ORGANIZE: Design your own event to benefit
our program. Call us at
239-985-7727 for details.
Please shop at Amazon Smile, and choose
us as your charity!
Amazon will make a donation to our
organization. Just select name Hope Hospice
and Community Services, Inc.
Sometimes love
needs a helping hand.
Home Health Care
Private Duty Nursing
They’re relying on you. And you may
need some help. At Hope, we understand you
Medication
have many roles in your family - and that few are as
Management
Personal Care important as your role of caregiver. We can support
Assistance all you do with our comforting care - coordinating
Proud Partner Agency
239-985-7727
800-859-0314
HopeParkinson.org
The Hope Parkinson Program is
provided by Hope HealthCare Services,
a not-for-profit, 501 (c)(3) status
community-based agency.
Caregiver Support medical needs, explaining options and providing
Family Education emotional guidance for you and your loved ones.
Palliative Care Together, we can make each day the best possible.
Expert Hospice Care
Let Hope be there for you.
Bereavement
Counseling
hopehcs.org • 239.482.4673
