Kolainu Magazine Spring 2010

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SNOEZELEN ROOM
VISUAL & SPATIAL STIMULATION
FOR CHILDREN WITH AUTISM
Spring 2010
Issues &
Answers:
Autism,
lost in the
mainstream
Issues &
Answers:
Autism,
lost in the
mainstream
Acclaimed
research
professional
visits children
with autism
Acclaimed
research
professional
visits children
with autism
O U R V O I C E
OLAI NU
A publication of Shema Kolainu-Hear Our Voices
School & Center for Children with Autism
The number of children
diagnosed with autism has
risen by epidemic proportions.
Now, one in 91 children are
diagnosed with autism. The
Centers for Disease Control
(CDC) estimates that there are
over 730,000 cases of autism
in the United States. ASD’s
know no barrier. They affect
all racial, ethnic, social and economic groups. Research
shows that boys are four times more likely to be diag-
nosed with autism than girls.
With every child born, families are flled with excite-
ment and anticipation of the life that their child will lead
and what they can help them accomplish. However,
when their child is diagnosed with autism, this route
changes. At Shema Kolainu- Hear Our Voices, School
and Center for Children with Autism, it is our passion to
help children with Autism Spectrum Disorders (ASD) and
their families.
Sponsorship opportunities are available and dona-
tions are appreciated and needed for growth of this
imperative center. Help make a difference in the lives of
our children and families.
At Shema Kolainu- Hear Our Voices we work with
hundreds of children enrolled in our center-based and
community-based programs in all fve boroughs of New
York City. Currently, there are thousands of children with
autism that need our services. Your help is an essential
component to help us reach this large percentage of
untreated children on the spectrum.
As you enjoy the magazine, give thought to how you
can build the future of a child, children and or entire
families touched by autism. Share in the successes
of Shema Kolainu-Hear Our Voices. And, may you be
blessed with love that warms your heart and home.
BLESSINGS,
Message from our Founder and President, Joshua Weinstein
Recent Visitors to Shema Kolainu
Shema Kolainu- Hear Our Voices received a grant to build
another foor to the building. Ezra Friedlander, Friedlander Group,
Assemblyman Lancman, Suri Gruen, SKHOV Executive Director, and
Gili Rechany, SKHOV Educational Director, survey the roof.
Assemblyman Rory Lancman, Queens, visited
Shema Kolainu- Hear Our Voices to discuss
autism education issues with our Executive
Director and Educational Director.
Council member Brad Lander, of Brooklyn’s District 39, supports the fght against
autism and visits students at Shema Kolainu- Hear Our Voices.
Founder and President, Joshua Weinstein speaks with NY State Senator Kevin
Parker about the schools Raise the Roof Campain.
Joshua Weinstein
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Spring 2010 | Kolainu 2 www.shemakolainu.com
FOUNDER/PRESIDENT: Joshua Weinstein
EDITOR: Ruth Amber Gristak
WRITERS: Nicole Hegewald
Sarah Friedman
Dana Rosenwasser
ART COORDINATOR: Briseida Guzman
No part of this publication may be reproduced
without written consent of Shema Kolainu - Hear
Our Voices. The appearance of advertising in the
Kolainu - Our Voice publication in no way im-
plies endorsement or approval by Shema
Kolainu - Hear Our Voices of any advertising
claims or the advertiser, its product or services.
Shema Kolainu - Hear Our Voices disclaims any
liability whatsoever in connection with adver-
tising appearing in Shema Kolainu - Hear Our
Voices’ publications. Contents Copyrighted
©2009 by Shema Kolainu - Hear Our Voices.
ISBN 0-9761677-0-1() For all advertising inquiries please call:
Kevin Schneider
718-686-9600 ext. 144
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SHEMA KOLAINU DEBUTS SNOEZELEN ROOM
PG 18
TABLE OF CONTENTS
On The Cover
Autism in Hollywwod ..........Pg 4
WHAT’S HAPPENING IN 2010 ....................Pg 5
ANNUAL LEGISLATIVE BREAKFAST ........Pg 6
LEGISLATIVE LUNCH IN ALBANY .............Pg 7
AUTISM INITIATIVE RALLY IN NYC ............Pg 8
Feature Story
ACCLAIMED RESEARCH PROFESSIONAL
VISITS CHILDREN WITH AUTISIM .............Pg 10
Issues & Answers
YOUNG ADULTS WITH ASD:
New Approaches to An Unmet Need .........Pg 13
WHEN THERE IS NO REFLECTION ...........Pg 14
LATEST AUTISIM NEWS
AND RESEARCH .........................................Pg 16
Inside Look
A LETTER TO SHEMA KOLAINU ................Pg 20
Read about Amanda Seyfried and her
connection to autism. Pg 4
Student Michael Becker. Pg. 20
Sensory stimulation room.
Pg 18
Politicians, advocates and families gather for autism. Pg 8.
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CLIENT:
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ROUND:
DATE:
SPECS:
ACCT. MGR. PROD. MGR.
DESIGNER CREATIVE DIR.
PROOFER
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* While KO makes every effort to assure accuracy, KO will not assume any responsibility or liability for errors or omissions regardless of our role
in the supervisory process. It is the client’s responsibility to review and approve all content, production artwork and material specifications, and
to proof and approve all final materials.
Bob’s Red Mill
1594
1
2.09.10
7.63x10.57
X
www.bobsredmill.com | 1.800.349.2173
Trust Bob. Trust Bob’s Red Mill. Our gluten free and casein free production facility and rigorous
onsite product testing make our products as safe as they are irresistible and easy to prepare. What’s
more, we now give you two new reasons to celebrate – our decadent and delicious Gluten Free
Vanilla Cake Mix and Gluten Free Shortbread Cookie Mix. Look for them and our more than 50
gluten free, casein free products at your favorite grocer or bobsredmill.com.
Your child trusts you.
Who are you going to trust?
M
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.A
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Autism in Hollywood: Grandin Sparks Interest
By Ruth Amber Gristak

Since the beginning of 2010, there
seems to be a new hot topic in the
Hollywood flm scene. What is this
tip-of-the-tongue topic? Autism.
February 2nd marked the premiere
of the flm Dear John. This emo-
tional story stars Amanda Seyfried
and Channing Tatum, and is based
off the best-selling Nicholas Sparks
novel. The flms secondary plot
is focused on the father (Richard
Jenkins) of Tatum’s character
who has undiagnosed autism.
This creates a
tear-jerking father,
son struggle. The
flm also features
informational sound
bytes and clips of
horse therapy for
children with autism.
Then, only a few
days later the flm,
Temple Grandin,
debuted on HBO.
This biopic flm
of Temple Grandin,
played by acclaimed
actress Claire Danes,
was a true journey into the life and thought process of
an individual with autism. Despite her autism, Grandin,
herself has become one of the top scientists in humane
livestock handling.
I spoke with Grandin after the debut of the flm and
asked her what she thought about the fnal cut. Grandin
explained, to me, that she feels that Danes portrayed
her accurately. Grandin told me that her favorite part of
the flm is when the show the cattle and other projects.
When I asked her what else she really likes about the
flm, she told me, “I really like that it does a good job of
showing how I think visually.”
I then asked Grandin what she thought about the cause
of autism. She said, “Autism is a complex disorder.” She
continued on to say that she feels “Genetics are a big
part of it” but “It is not simple genetics like you learn in
high school.”
Among her top picks for autism researchers is Nancy
Minshew. According to Grandin, Minshew, of the Uni-
versity of Pittsburgh has done research that shows that
people with autism have visual thinking. Grandin also
complements the autism researcher of Eric Corshawn,
Gerodine Dawson and Eric Hollander.
Temple Grandin is currently traveling
around the globe to tell her story and
speak to a variety of audiences on
autism.
Dear John Book Cover. Sony Screen
Gems purchased the rights to create the
flm version of this bestselling Nicholad
Sparks novel.
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Spring 2010 | Kolainu 4 www.shemakolainu.com
What’s Happening in 2010
WHAT
IS AUTISM?
Autism is the most common
condition in a group of developmen-
tal disorders known as the Autism
Spectrum Disorders (ASDs).
Autism is characterized by
impaired social interaction,
problems with verbal and
nonverbal communication, and
unusual, reptitive, or severly limited
activities and interests.
Autistic disorder is the most
commonly known type of ASD, but
there is also, including Asperger
syndrome. Each type has the same
symptoms. They differ in terms
of when the symtoms start, how
fast they appear, how severe
they are, and their exact nature.
By Shema Kolainu- Hear Our Voices, Staff Writer
In February, Shema Kolainu- Hear Our Voices, School and Center for
Children with Autism connected with the International Center for Autism
Research and Education (Icare4autism) for the 2010 International Autism
Conference, which features 30+ speakers.
In March there was a ‘Gift Basket’ fundraiser, sponsored by GWB Foods.
This effort was driven by dedicated staff and primarily raised funds from the
local community.
In April, Councilman Brad Lander, of Brooklyn, visited to the school and
center. During his visit he expressed his concern for children with autism
and praised the professional staff.
On May 27th, there will be a demonstration in front of City Hall. Joshua
Weinstein, Founder and President, of Shema Kolainu- Hear Our Voices is
expected speak.
In June Shema Kolainu- Hear Our Voices will close the streets surround-
ing there Brooklyn location for their school and center’s annual Autism
Awareness Day. Currently in preparation is this year’s Legislative Break-
fast. The grand event will be held at the Renaissance Hall in Brooklyn, New
York on July 14th.

For more information on Shema Kolainu- Hear Our Voices please visit the
offcial website. You can also sync up with the school and center on Face-
book at www.facebook.com/shemakolainu
The Shema Kolainu- Hear Our Voices, School and
Center for Children with Autism is located in Brooklyn
but serves children from the entire Tri-state area.
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Spring 2010 | Kolainu 5
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By Shema Kolainu- Hear Our Voices, Staff Writer
Early one Tuesday morning, Shema Kolainu-Hear Our Voices,
school and center for children with autism, hosted their 7th An-
nual Legislative Breakfast at the Renaissance Ballroom in Brook-
lyn, New York. The breakfast focused on the expansion of Shema
Kolainu—Hear Our Voices to the fve boroughs of New York City
with center and home based services. President and Founder
Joshua Weinstein discussed the remarkable progress which had
been made; “Over ten years ago Shema Kolainu opened its doors
to three school age children; the frst school and center of its kind.
Today, we serve over ffty children in our preschool and school age
programs and over eight hun-
dred children in home based
services. It is a totally remark-
able feat accomplished with
Hashem’s help and guidance”.
The primary goal of this event
was to educate legislators
about the urgency of autism
care and research, raise sup-
port and awareness, and share
ideas about working toward
combating autism through
effective public policy and
legislation. In addition, commu-
nal leaders, civic and religious
leaders, community philanthropists, and elected offcials,
attended to pay tribute to several outstanding public
offcials and community leaders for their dedication in
furthering the mission of Shema Kolainu.
US Senators Charles E. Schumer and Kirsten E.
Gillibrand served as Honorary Chairs of the Breakfast.
John A. Catsimatidis, Chairman & CEO of the Red
Apple Group, Inc. delivered greetings. Breakfast chairs
were State Senators Kevin Parker and Diane Savino,
both stalwart supporters of Shema Kolainu. Menachem
Lubinsky, the dynamic President and CEO of Lubicom
Marketing Consulting, served as Master of Ceremonies.
This event was generously sponsored by Gristedes
and coordinated by The Friedlander Group.
Shema Kolainu - Hear Our Voices expressed their
gratitude to several honorees. NYS Senate Chair on
Mental Disabilities Shirley Huntley received the Legisla-
tive Leadership Award, for her commitment to the cause
and ideals of Shema Kolainu and her tireless efforts to
create and pass legislation helpful to the needs of our
community. NYC Council Finance Chair David Weprin
received the Autism Leadership Award for his diligent ef-
forts in sponsoring the Autism Initiative which funds vari-
ous organizations committed to autism care and educa-
tion. A special suprise award was presented to Breakfast
Master of Ceremonies Menachem Lubinsky by Shema
Kolainu Board Member Milton Weinstock in apprecia-
tion for his invaluable contributions to the success of the
Edward Skyler, Deputy Mayor for Operations,
receives the City Leadership Award.
Brooklyn Borough President Marty Markowitz (right) announces
“Shema Kolainu- Hear Our Voices 7th Annual Legislative Breakfast
& Awards Celebration Day.”
7
th
Annual Legislative Breakfast
Elana Broitman, Senior Advisor to Senator Kirsten Gillibrand, receives the Public Service Award.
Pictured from left to right: Menachem Lubinsky, President and CEO of Lubicom Marketing
Consulting, Joshua Weinstein, President and Founder of SKHOV, Micheal Miller, Executive VP of
JCRC, Elana Broitman, Peter Rebenwurzel, SKHOV Board of Directors, and Milton Weinstock,
SKHOV Board of Directors.
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Spring 2010 | Kolainu 6 www.shemakolainu.com
yearly legislative breakfast.
Other public offcials received awards in grateful
recognition of their commitment to Shema Kolainu
and the families and children it serves throughout the
year: Brooklyn Borough President Marty Martkowitz,
Brooklyn Leadership Award; Deputy Mayor Ed Skyler,
City Leadership Award; Fred Kreizman, Assistant
Commissioner, Mayor’s Community Affairs, Shema
Kolainu Hakaros HaTov Award; Elana Broitman,
Senior Advisor,
Senator Kirsten
Gillibrand, Public
Service Award;
Robert Gottheim,
District Director,
Congressman Jer-
rold Nadler, Com-
munity Appreciation
Award.
Legislative Lunch in Albany
The dedicated staff of Shema Kolainu- Hear Our Voices, School and Center for Children with
Autism, went to Albany to raise awareness among lawmakers and advocate the need for con-
tinued funding for children with autism. Legislators learned all about Shema Kolainu and how
they can help children with autism by voting to support funding for children with autism.
Senator Diane Savino, Co-Breakfast Chair,
explains “We have an obligation to expand
services for children with autism and to invest
research dollars to fnding not just the cause,
but the cure.”
Continued from Pg 6
Spring 2010 | Kolainu 7
www.shemakolainu.com
By Staff Writer
Shema Kolainu-Hear Our Voices joined city offcials,
autism advocates and parents on the steps of New York
City Hall to raise awareness regarding the City Council’s
Autism Services Initiative.
Among those in attendance were Councilman David We-
prin and Councilman Oliver Keppel as well as Managing
Director Ronald Solloway and Deputy Managing Director
Anita Altman the Department of Government Relations &
External Affairs for the UJA Federation of Jewish Philan-
thropies of New York and representatives of the Friedland-
er Group, Ezra Friedlander and Simcha Eichenstein.
Last year the council allotted $1.575 million to support wrap-
around services for children on the autism spectrum, providing
training and referrals for about 8,000 families. These ser-
vices include after-school programs, weekend respite, sports
leagues, parent and teacher training, bilingual services, a
crisis-intervention program, kids clubs, autism workshops, and
outreach and awareness activities.
“This crucial for deciding the funding for these services,” said
Council Member David Weprin. “Please write your council
member and tell him how important these funds are.”
One parent recounted her family’s struggle for funding for her
son with autism and agreed with Councilman Weprin’s call to
action. “Watching my son Jake play soccer is such a rewarding
experience. There is no other place in our community for him
other than these [Autism Services Initiative] funded programs.”
More than 75 representatives from a variety of organizations
attended, including Shema Kolainu-Hear Our Voices and
UJA-Federation of New York.
Autism Initiative Rally: New York
Former Councilman David Weprin speaks to the crowd.
The crowd gathers on the steps of New York City Hall.
More than 75 organization representatives attended.
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The Autism Community and Bob’s Red Mill
Recently, I spoke with
Matthew Cox of Bob’s Red
Mill manufacturers. This
company is the maker of
the natural line Bob’s Red
Mill products. Matthew is
committed to the compa-
ny’s goal of changing the
way people eat and has
played an instrumental role
in the growth of Bob’s
Red Mill as a leader in
whole grain foods.
Bob’s Red Mill manufactures over 300 whole grain prod-
ucts that are available in the U.S. and throughout the world.
The company uses as few ingredients as possible and
has attracted strong support from the autism commu-
nity. As people began to order things online, the company
noticed the rapid demand for gluten free products. Matthew
told me, they “never sought out the autistic community,”
but supports the cause and is happy to provide high-quality
gluten free products.
Bob Moore, who, according to Matthew, enjoys “things
that are the soulful elements of the past”, founded Bob’s
Red Mill. His venture into whole grains came, after a surge
in processed foods, at a time when his wife had gotten into
whole wheat. Then, just as Moore was about to ditch the
project, he stumbled across a mill in Oregon City. Shortly
there after, he made the move to Portland.
The frst shop was opened in Redding, California. In the
last decade Bob’s Red Mill went from a hobby to success-
ful brand, as the public perception of wheat grain changed.
Founder, Bob Moore likes that he is doing something differ-
ent with his life.
Then, their niche market took on a broader realm. Accord-
ing to Matthew, it seemed like there was more of a desire
homemade than the processed corporate food push cycle.
There was a surge in awareness of food as a preventative
health cycle.
“It’s something that people can feel good about eating,”
Matthew told me.
Bob’s Red Mill carries many different grains including
Mathew Cox is the reigning world
porridge making champion.
By Amber Gristak
ProxTalker.com, LLC
PO Box 190
Thomaston, Connecticut 06787
United States of America
(860) 283-0966
(866) 962-0966 (Toll free)
[email protected]
http://www.ProxTalker.com
Leveraging
technology to improve
quality of life.
Patents Pending
The right tool for the job…
My son Logan has autism.
He cannot talk yet.
We invented the Logan ProxTalker to help meet my
son’s communication needs. There is nothing on the
market quite like it. It is the first moveable picture
communication device that actually talks. There are
no levels or menus to hinder the simple logic of
basic communication. Simply place the picture
sound tags on the buttons and press – out come the
words. There is an onboard microphone so words
can be added or changed with ease using special
function tags. It is built to last.
Whatever you do for your child, be sure to work
closely with a team of professionals to develop the
best program of treatment. Consult your Speech
Therapist and your Assistive Technology Specialist
to be sure you select the right tools for the job.
Sincerely,
Glen Dobbs, President
ProxTalker.com LLC
ProxTalker 12/8/08 8:43 PM Page 1
wheat, spelt, Ethiopian grain and more. “If there is a whole grain out
there, we’ve got it” said Matthew.
Overall, the company feels good about its mission of bringing
quality foods to customers. They even go the extra mile and completely
segregate the gluten free products from those that may have gluten.
And, according to Matthew, many variations of gluten free people
“swear that it works for them” and that’s something that they “feel good
about.”
In 2009, Matthew travelled to Scotland with other staff at Bob’s Red
Mill, to compete in an annual Porridge making contest. This tradition-
ally Scottish competition only allows 15 a select persons to compete.
Matthew took home the win and was the frst American to ever win
this competition. His winning porridge used dried Oregon cherries,
pears, and roasted hazel nuts on toasted grains (with heavy creams in
preparation for the oats). He then toasted it with Pear Brandy, lit it on
fre, made a brule’ top and
added hazelnut.
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Recently, the highly acclaimer autism professional, Eric
Hollander, M.D. visited Shema Kolainu - Hear Our Voices,
School and Center for Children with Autism. The doctor is
known for his autism research using oxytocin and focus on
young adults with autism. In early 2010 alone, he was fea-
tured in the Washington Post, Newsweek, MSNBC and Epoch
Times. Upon arrival at the autism school and center, he was
warmly welcomed by the students with many smiles and
handshakes.
Dr. Hollander is the Chairman of Advisory Board for the
International Center for Autism Research and Education,
Inc. (Icare4autism). During Icare4autism’s 2010 International
Autism Conference, he will speak and chair a symposium.
The event features 30+ speakers and is being held at the
Renaissanace Ramada in Jerusalem, on July 5-6, 2010.
Dr Hollander will be heading this endeavor to create a model
program that will address both the clinical and educational
side of vocational training for young adults with autism. It
will include social skills training, treatment for co-morbid condi-
Dr. Hollander is
Research Attending
Psychiatrist, Montefore
Medical Center Univer-
sity Hospital of Albert
Einstein College of
Medicine; Editor-Amer-
ican Psychiatric Publish-
ing Clinical Manual of Autism Spectrum Disorders,
and the forthcoming Textbook of Autism Spectrum
Disorders; and Chair, Advisory Board, International
Center for Autism Research and Education, Inc.
(Icare4autism).
tions, sports activities, and mentoring. He will also be
launching research programs at Shema Kolainu- Hear
Our Voices.
FEATURE STORY
Acclaimed Research Professional Visits Children with Autisim
By Shema Kolainu- Hear Our Voices, Staff Writer
L/R: Dr. Eric Hollander, Joshua Weinstein and Suri Gruen. A devoted teacher hand paints with a student.
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Finding the Causes and Treatments for ASD
What Does Medical and Educational Research Tell Us?
Tradeshow and Exhibitions
include technological, pharmaceutical,
educational, therapeutic,
and publication vendors.
Board of Directors
Beth Diviney, PhD, BCBA
Eitan Eldar, PhD, BCBA
Eli Hatchwell, PhD, MD
Brian Iwata, PhD
Amos Rolidor, PhD, BCBA
Cory Shulman, PhD
Steven P. Shelov, MD
Ditza Zachor, MD
Nurit Yirmiya, PhD
Joshua Weinstein, MA Ed., MBA
Judah Schorr, MD
Robert A. Knakal
Peter Rebenwurzel
Suri Gruen
Advisory Committee
Eric Hollander, MD Chairman
www.icare4autism.org
A few of our highlighted
speakers:
Joshua Weinstein, MA Ed., MBA
Founder and President of Icare4autism
Eric Hollander, M.D.
Chairman, Icare4autism Advisory Committee
Research Psychiatrist, Montefore Medical
Center University Hospital of Albert Einstein
College of Medicine “Modern Approaches to
the Study of the Genetics of Autism”
Eli Hatchwell, M.D., Ph.D.
Chair of Genetics Conference
Director of the Genomics Core Facility and
Associate Professor, SUNY at Stony Brook
“Neuropsychopharmacology of Autism
Symptom Domains”
Amos Rolidor, Ph.D., BCBA
Department of Behavioral Sciences, Emek Yezreel
Academic College “Applied Behavior Analysis
Credentialing”
Eitan Eldar, Ph.D., BCBA
President of Israel ABA Association
“Inclusion of Autistic Students in the Israeli Educa-
tion System”
Spring 2010 | Kolainu 11
www.shemakolainu.com
ISSUES AND ANSWERS
Spring 2010 | Kolainu 12 www.shemakolainu.com
V
V
Na-
by Eric Hollander, MD
We are beginning to see a new wrinkle in an emerging
epidemic – young adults with Autism Spectrum Disorders
(ASDs), sometimes higher functioning, who are presenting
in increasing numbers to high schools, colleges, and resi-
dential autism programs. Sadly, there is a lack of effective
services and treatments for these young adults who
could potentially be making meaningful contributions to
our society and to our economy. Further, given the greatly
differing strengths and weaknesses that these young adults
posses, ranging from special mathematical or visuospatial
abilities to severe mental retardation and epilepsy, one size
approaches certainly do not ft all.
Families are often left to fend for themselves, and to face
diffcult choices, such as sending their loved ones far away
for residential care, or paying for an array of services that lack
central coordination and do not have a proven track record.
The unrealized goal in educational and vocational services
for young adults with Autism Spectrum Disorders is to identify
the unique natural skills and abilities that such people pos-
sess, and to match these skills and abilities to the appropriate
educational or workplace setting. In addition, after identifying
the specifc cognitive and social defcits that these individual’s
possess, one needs to develop specifc remediation and
social skills programs to target these defcits, and to provide
learning specialists and vocational coaches to implement the
needed services in the real world settings.
Much of the focus in recent years has been to identify early
symptoms of autism through intensive screening in early
childhood, and to develop early interventions and intensive
educational approaches in early childhood that improve
the overall developmental trajectory of the illness. This has
YOUNG ADULTS WITH ASD:
NEW APPROACHES TO AN UNMET
NEED
resulted in important gains in the feld. However, this too has
contributed to the newer phenomena of higher functioning
young adults who are often lost in mainstream settings with-
out specifc and adequate supports and interventions.
I have become increasingly focused on the need to deve
lop centralized daily programs which provide a rich array
of scheduled activities to young adults with ASDs. Such
ISSUES AND ANSWERS
programs provide structured positive activities and healthy
habits or compulsions to insure the optimal level of stimula-
tion. Neurocognitive assessment to uncover strengths and
weaknesses, and identifcation of comorbid conditions which
can be targeted are essential. Social skills training facilitates
conversational and pragmatic social interactions and self
advocacy. Activities of daily living training improves these
essential self-care skills. Neurocognitive rehabilitation and
habilitation aim to improve executive function, enhance
working memory and strengthen the ability to plan, orga-
nize, and break down projects into smaller components,
and to follow-through with plans. As students graduate
these foundational programs, they transition into real-world
educational or job-related settings that match their unique
skill sets but provide individualized support for the specifc
cognitive and social defcits that have been earlier identifed.
A centralized coordination of learning specialists and job
coaches insure that these young adults do not fall through
the cracks, and are able to function at their highest level pos-
sible in the mainstream world.
A new phenomena of higher functioning young, ASD adults exist and are
getting lost in mainstream settings.
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Spring 2010 | Kolainu 13
www.shemakolainu.com
When There is No Refection
By Sarah Friedman
When a fve year old child is learning to tie their shoe, or a
two year old is learning to hold a fork, or a sixth month old is
learning that a smile relates to being happy, they require input
from the outside world to understand what these things mean.
The child learns the meaning of the action by watching other
people and incorporating the knowledge into their own frame
of reference. So, what happens when something blocks
this passage of information? According to the Mirror
Neuron theory of autism, it can have devastating effects on a
child’s ability to learn and relate.
Our brain cells, or neurons, com-
municate by releasing chemicals
called neurotransmitters. Measur-
ing when, where, and how much
neurotransmitter is released can
demonstrate, in essence, how we
think. Mirror neurons are neu-
rons that respond both when a
person is doing something, as
well as when a person watches
the same act being done by another person. For example,
the mirror neurons of a normal person will fre when they clap
their hands, as well as when they watch someone else clap
their hands. Disruptions in this mirroring system may be a
cause of the social ineptness and defcits in learning through
imitation seen in the autistic population.
To say that most autistic individuals lack general social skills
is somewhat of an understatement. For anyone who has
raised or worked with an autistic person, the idea of socializa-
tion is one of the biggest aspects of dealing with the condition.
The concept of being able to empathize, or simply register
another person’s signifcance, as well as the ability to use the
wealth of information in life learned through other people are
often missing.
The mirror neuron system was discovered in the 1990s’s
when neuroscientist Giacomo Rizzolatti found that a
monkey’s neurons fred in equal amounts when it picked
up peanuts, as when it watched a human pick up peanuts
(Ramachandran & Oberman, 2007). The thought was
that these neurons, by acting like mirrors, provided
understanding of the intent behind the action of someone
else thereby producing a duplicate reaction in the monkey
watching (Ramachandran & Oberman). The same was
found to be true for humans according to several studies.
A couple years ago a study
came out led by Mirella Da-
pretto (2006) which compared
the brains of autistic children
to non-autistic children.
They measured blood fow
to certain areas of the brain
using an MRI machine as the
children watched or imitated
different facial expressions. It
was found that every autistic
child, when watching the expressions, showed far less
activity in the pars opercularis of the inferior frontal gyrus,
a part of the brain which provides humans the ability to
understand each other’s intentions by observing others’
actions or imitating their behavior. The non-autistic children
had equal amounts of activity whether doing or watching.
The intensity of each child’s autism was rated as well and
it was found that children with more severe autism had
even less activity.
Another study by Oberman et. al. (2005) used an electro-
encephalogram (EEG) to measure brain activity in certain
regions by looking at mu waves, which are brain-wave
patterns which are suppressed or blocked when the brain
Autistic children had less activity in the inferior frontsl gyrus.
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Spring 2010 | Kolainu 14 www.shemakolainu.com
is busy doing, seeing or imagining an action. When a person
does something voluntarily or watches this same action being
done by another person, the waves are suppressed. The chil-
dren in the study were measured as they watched and per-
formed different acts. In the autistic children though there was
suppression of mu waves when they themselves performed the
action, there was little to none when watching others. The non-
autistic children showed suppression during both.
Yet another study, led by Luigi Cattaneo (2007), used an
Electromyograph (EMG) to measure muscle activity in a muscle
used to open the mouth called the mylohyoid. Both autistic
and non-autistic children were measured as they watched
someone else reach for and grab food, and then as they did
it themselves. The non-autistic children had muscle activity
while watching and performing the action, whereas the autistic
children had no activity while watching,
or while grabbing for food themselves.
Their muscles only showed activ-
ity when it came time to eat. The
implication being that autistic children
not only had an issue with the inten-
tion behind someone else grabbing
the food, but also failed to make the
connection between their own motor actions.
The term ‘broken mirror’ is often used to describe this
theory because of the idea that the system in the brain that
allows a person to understand another person, to mirror their
actions or feelings, is broken. It’s like a two way street with an
obstruction blocking one lane making incoming information
about the world much more diffcult to obtain and understand.
Think about how much in life we learn from other people simply
from watching and through imitation.
Imagine the many defcits a person with an impeded ability to
do this would have. The impact of not being able to relate to or
understand others can have a shattering effect on human com-
prehension and emotionality. Common aspects of autism like
issues with language development and speech, inability to com-
municate non-verbally, the inability to recognize and understand
emotions and intentions in others, the general lack of desire for
social relationships, and the inability to think abstractly are all
things that could be a result of this faulty system (Ramachan-
dran & Oberman, 2007).
This is not to say that the Mirror Neuron theory explains
all aspects of autism. Scientists like Helen Tager-Flusberg,
Ph.D contend it does not explain aspects like the repetitive
‘stimming’ behavior, hypersensitivity to sound and touch, poor
motor coordination, or the high rate of mental retardation often
co morbid (Dingfelder, 2005). Along with that, most of the
research comes with the limitation of being done solely
on higher functioning subjects with an inability to say whether
the results can be generalized to the entire autistic population
(Dapretto, 2006).
If, however, the theory can be confrmed through further
research it could open a new door in
the diagnosis and treatment of autism.
Children could be diagnosed as
early as infancy by looking at mu wave
suppression, allowing for behavioral
treatment to begin earlier (Ramachan-
dran & Oberman 2007). If a chemical
imbalance causes the disability then
perhaps compounds can be found that either stimulate under
working neurons or mimic what they do (Ramachandran &
Oberman). It even opens the door for biofeedback to be used
as it teaches a person to control their own responses to
stimuli (Ramachandran & Oberman). Studies on this topic
are underway and it will be interesting to see how effective a
method it is.
In the end, there might not be one decisive answer to autism.
Defcits in the Mirror Neuron System could themselves be a
side effect of some greater problem not yet identifed. Or per-
haps the research going on right now will expand our under-
standing of the system to include the aspects that don’t seem
relevant now. Whatever the next round of research shows,
there is no denying that a connection exists between social
understanding and defcits in particular brain function. And
though the science itself is still new, hopefully it will provide
for better ways of dealing with one of life’s biggest mysteries.
The term ‘broken mirror’ is
often used to describe this
theory because of the system
in the brain that allows a person
to understand another person,
to mirror their actions or
feelings, is broken.
Spring 2010 | Kolainu 15
www.shemakolainu.com
New Autism Loci Discovered
As a result of the Autism Genome Project Consortium,
an unidentifed site was revealed on chromosome 5
where one particular allele was transmitted less often
than expected to autistic individuals whose parents
carried the allele. Thus, this allele, although only found
in 4% of the population as a whole, likely confers some
protection against autism.
Neural stem cell development may be
linked to autism
The study, conducted at the Burnham Institute for Medi-
cal Research in La Jolla, CA has demonstrated that mice
lacking the myocyte enhancer factor 2C (MEF2C) pro-
tein in neural stem cells had smaller brains, fewer nerve
cells and showed behaviors similar to those seen in hu-
mans with a form of autism known as Rhett’s syndrome.
New ways to diagnose autism earlier
Scientists are using new techniques to study children as
young as a few months old for signs of possible autism
and to fag them for more extensive analysis. A comput-
erized test using eye-movement sensors that aims to
predict the risk of autism in children as young as 9
months. The system, which administers fve eye-track-
ing tests over 10 minutes, measures the direction and
fxation of a child’s eyes when confronted with computer-
ized images, including human faces.
By identifying children early who may be at risk of
developing autism, even without a defnitive diagnosis,
parents can consider initiating behavioral therapy, the
most widely validated treatment for the condition.
New Australian tool developed for
diagnosing autism in young children
The new assessment tool has been designed to identify
developmental and behavioral issues associated
with autism in children less than 12 months old. At
present, autism is rarely diagnosed before a child is 18
months old. The assessment tool included a question-
naire for parents,
along with a struc-
tured play session
to score the children
on their responses
to a number of spe-
cifc tasks.
Neuroplasticity & Autism
The latest fndings in the feld of neuroplasticity support
autism researcher’s faith in the capacity of the human
brain to recoup and to compensate for injury and illness.
Neuroplasticity refers to the changes that occur in the
organization of the brain as a result of experience. New
neurological pathways can be made with an autism
therapy that is provided with suffcient consistency,
repetition, and intensity. However, therapies that are
Latest Autism News & Research
The Centers for Disease Control (CDC) estimates that there are over
730,000 individuals with living with autism in the United States.
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only provided randomly and infrequently do not result in
much improvement at all.
Neuroplasticity is much more effective at younger ages,
but can occur at any age. Thus, the recognition of early
signs of autism is extremely important so that the appropri-
ate autism therapy can be initiated as soon as possible.
Spring 2010 | Kolainu 16 www.shemakolainu.com
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GENETICS OF AUTISM
Researchers have found a
gene called CNTNAP2 that
is linked to specifc language
impairment (SLI). Because the
genetic region coincides with
one associated with language
delays in children with au-
tism, the researchers said the
fndings could represent a
crucial genetic link between
the two disorders. Develop-
mental speech and language
disorders are highly heritable
and this study yields new in-
sights into the causes of such
impairments, and eventually,
researchers hope, improved
diagnosis and treatment.
Led by Simon Fisher of
the University of Oxford,
the research team frst looked
a gene called FOXP2, which
regulates other genes and
appears to play a role in the
severe yet rare from of speech
disorder SLI. On such gene
regulated by FOXP2 is called CNTNAP2. Although
FOXP2 is a regulatory Gene screen: factory that
switches off other genes and is not itself involved in
other cases of language impairment, the downstream
pathways that it switches on and off might be. Re-
searchers are still in the process of searching
for what genes FOXP2 is regulating, CNTNAP2
being the frst one. This is the frst time anyone has
pinpointed a specifc gene that is involved in common
forms of language impairments. Fisher’s study shifts
the focus from a language gene to a network of
language-related genes.
FIRST CAMP EVER EXCLUSIVLY FOR BOYS
WITH AUTISM AGES 6-16








Camp Ahuvim is located in the Catskill region of New York.

Campers enjoy traditional camp and recreational activities
as well as therapeutic trips.

Each camper has a professionally trained counselor &
receives required therapies.

The camp director Shlomo Kertzner has many years of
experience in camp administration & dealing with the
Autistic population.
For more information
or to make a donation
please call
888-6-AHUVIM
(888-624-8846)
or visit us on the web
www.campahuvim.org
Camp Ahuvim is
under the guidance
of many
Professionals
&
Rabbonim.
Spring 2010 | Kolainu 17
www.shemakolainu.com
COVER STORY
The Snoezelen Room helps to improve auditory, visual and motor
skills in a safe surrounding designed specifcally for children with
autism.
Challenges and excitement start as soon as the students step into
the room. Stepping stones with varying textures and patterns litter
the foor. A “busy train” activity panel which provides visual and
spatial stimulation hovers over the room and reinforces gross-
and fne- motor skills.
Farther into the room, an exciting game of musical hopscotch
awaits, with various settings that adjust to any diffculty level. Every
time the student jumps on a hopscotch square, a display panel with
corresponding colors lights up and plays a sound.
Just skip past the hopscotch and there is an interactive LED spiral
sensation panel. This panel provides therapeutic light sequences,
it will provide visual tracking practice and strengthen cause and
effect associations.
The students can make changes in the pattern, color and speed
of the lights. There is also a designated area where students will
encounter a sound-activated strand of chasing lights
which will build visual skills as well as assist with speech
therapy.
If they don’t want to play with lights they can choose
to interact with bubbles; lots of bubbles! Several lighted
columns of tiny bubbles foat up in front of the child.
An interactive panel allows students to control the color,
fow, and speed of the bubbles.
Next, they can foat over to fnd a colorful, soothing
experience from a full-body warming massage mat,
integrated with a fber-optic light spray. Once relaxed,
students will fnd a large hammock-like chair, covered in
soft, natural sheepskin in the corner. Safely cradled in
the chair, students can relax as the chair gently swings
from side to side.
Students can play or relax on the big cushy crash mat
that covers the foor. From here they can experience
‘SNOEZELEN’ SENSORY ROOM DEBUTS
AT SHEMA KOLAINU-HEAR OUR VOICES
By Nicole Hegewald
A brand new therapy faci-
lity, the Snoezelen Room, has
debuted at Shema Kolainu-
Hear Our Voices and Center
for Children with Autism.
The new environment provides
controlled multi-sensory thera-
py, complete with special ac-
tivities, lights, scents, sounds,
textures, and toys to help build
environmental awareness.
Spring 2010 | Kolainu 18 www.shemakolainu.com
aroma therapy and take in the magical sights from the
solar projector or the laser stars projector. This is also a
good spot to watch the mirror ball, as it casts beautiful
colors and lights on the room.
Against the back wall, students can lay or crawl on a
big plush lady bug with gentle vibrations, sit in a giant
beanbag chair. From here students can also observe the
bubbling LED water panel, ultraviolet light spray, and
the domed mirror panel.
Students can also sit in a safe, soft foam rocker. They
also have access to a vibro-music beanbag chair in the
corner. This vibrates along with music, and can be used
with the weighted blanket for an enveloping therapeutic
experience.
Finally, as students head back towards the door, they
will fnd two more tactile panels. One is mirrored, with
sliding beads and a maze of wires, to challenge students’
visual perception, build logical thinking and improve
hand-eye coordination. The other is an exploratory maze
with exciting sea creatures that can be guided along the
ocean foor.
All of these exciting features are part of the Snoezelen
system that has been specially designed for Shema
Kolainu. Additionally, its many settings can be adapted
for different students or groups of students to provide
the ideal therapy environment. Snoezelen rooms were
developed in the 1970s in the Netherlands, and are now
used worldwide to help children and adults with a variety
of conditions. They have been shown to be especially
useful for people with autism, as they provide a highly
controlled environment which can both relax and stimu-
late the senses.
COVER STORY
Spring 2010 | Kolainu 19
www.shemakolainu.com
Letter from Carol Bueti, Grandmother
I just want to share my testimony with you. I am the
grandmother of a child with autism that attends Shema Ko-
lainu. Your school has done so much to help Michael in such
a short time. Here is our story. Please feel free to share it, or
perhaps use it in such a way to inspire others.
Michael is an adorable little boy in every way His mom, my
daughter, is deaf and exposed him to American Sign Lan-
guage, since birth. My daughter and grandson, Michael, live
with us, his hearing grandparents and each and every one
of us exposed him, in everyway, to the English language as
well. We were all puzzled as to why he wasn’t talking since
he had so much stimulation at home. Children of deaf par-
ents use sign language as their frst means of communication

This was not happening. He wasn’t communicating with his
voice. We were all concerned. He began with Early Interven-
tion services at about sixteen months, starting at home and
then getting services in an E.I. school in our area. We saw he
was making little progress at the school he was attending.
At three years old, Michael was diagnosed with PDD/NOS.
INSIDE LOOK
A LETTER FROM A GRANDMOTHER OF ONE OF OUR STUDENTS GIVES
US AN INSIDE LOOK INTO THE ACHIEVEMENTS OF OUR STUDENTS
Michael started Shema Kolainu the following Septem-
ber. Miryam was his teacher, along with Rochel, Devori,
and Caroline as assistant teachers. In a few months,
there was evident change. He so needed the structure
ABA programs provides.

In just a few months, he began using words to express
himself, asking for things where before he just helped
himself. In a short time, one word became two, three
became four and so on. He is continuing to grow in lan-
guage and there are times he truly amazes us.

As a grandmother, I often wondered if Michael would
ever speak. Ten months have passed since Michael
started Shema Kolainu and his voice is music to our ears.

His tantrums have decreased. His expressive language
keeps on increasing. His eye contact has improved. He
truly enjoys the structured but loving school setting he
is in. He has grown in so many ways. There is a light in
his eyes, and there is hope in our hearts. Every teacher
keeps us abreast of Michael’s progress and goals. Chani,
Educational Coordinator, always contacts us about any
concerns that she or his teachers or therapists have and
Student, Michael Becker, continues to grow in language and recently met MISS USA 2009, Kristen Dalton, as she sought to learn more about autism.
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Spring 2010 | Kolainu 20 www.shemakolainu.com
How bright
is his future?
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with special needs can be difficult. We understand this
complex process – not only as attorneys dedicated to
the practice of disability law, but as parents, siblings,
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The member attorneys in the Special Needs Alliance
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So let us help to secure a brighter future for your loved
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our own concerns are always addressed. Weekly prog-
ress reports help us to see all the work that goes on in
the classroom.
I often wonder, with all the work going on, how can Mi-
chael love school so much? He loves it simply because
his teachers provide an atmosphere of warmth, love and
praise. How nice it is to hear him try to sing the songs
he learns in school. Dinner time has proven to be a lot
better since Michael has learned to sit and eat at the
table properly. Restaurants are even becoming easier
to enjoy, as his behavior has really improved during his
sitting and eating time.
Dedicated therapists have helped Michael greatly with
his speech and occupational therapy needs. Here again,
we are informed of Michael’s progress and future goals.
Michael’s work with the art therapist has flled my kitchen
wall like an art gallery. Yes, Michael has a full day, but
each moment is flled with a purpose. The purpose is to
help him to develop his mind and body, and socialization
skills. Michael has a long road ahead of him, but, he has
begun walking down that road and we are very proud of
him. Michael has brought us a lot of smiles and a lot of
laughter. He has shown us what he can do. What he can
do is a lot more than he did just ten months ago. He is
quite a character.
Last but not least, workshops at Shema Kolainu are
remarkable. Gili (Rechany) Educational Director, pres-
ents her workshops with knowledge and skill. Questions
are answered, subjects discussed and minds are
enlightened. These workshops provide invaluable infor-
mation about the vast spectrum of autism. The informa-
tion is accurate and helps us as a family to be informed
of the different methods and technology available to
children with autism.

On behalf of Michael’s family, my thanks to you and
your staff for all of your dedication and love for children
on the spectrum.
Spring 2010 | Kolainu 21
www.shemakolainu.com
RESOURCES
The EyeMax System can be used by people of
all ages and cognitive abilities with direct vi-
sion in one or both eyes. It provides freedom for
limited head movement, eliminating the need to
manually focus the system.
e-talk Tablet features a 1.0 GHz processor
and had built-in networking capabilities to
surf the web. The e-talk tablet can be used as
a stand-alone communication device, or as
a normal operating tablet PC. Medicare and
Medicaid only funds dedicated speech de-
vices, thus the e-talk tablet with Windows XP
Home is not covered.
Go Talk4+ is ideal for beginners, with big keys
and large, clear picture cues. It can also func-
tions as a teaching tool for kids to use inde-
pendently.
The Tech/Speak with Environmental control
features 6 levels, ea and 32 eletrical devices.
It features a light-touch water-resistant frame.
Spring 2010 | Kolainu 22 www.shemakolainu.com
RESOURCES
By Dana Rosenwasser
Community Enterprise in Scotland (CEiS),
which owns software company Specialiste-
rne, has become a force in autism advocacy.
Previously known for recruiting workers with
autism, Specialisterne has been awarded a
humongous grant of £407,036, or the Ameri-
can equivalent of approximately $616,492 by
the BIG Lottery Fund to expand its company
program to Glasgow in the United Kingdom.
Gerry Higgins, the Chief Executive of
CEiS, knows the overwhelming autism statistics and shares
the same vision Thorkil Sonne had when he founded Spe-
cialisterne. Higgens expressed his concern that “only 13%
of adults with an Autism Spectrum Disorder are in full-time
employment.” Higgins then thanked the BIG Lottery Fund by
saying “Funding has helped to realize a dream that has been
three years in development.”
Autism IT: Employment Expands Internationally
Part of the United Kingdom’s lottery, the BIG Lottery
Fund distributes a percentage of lottery money totaling to
millions of pounds every year to important
causes. Alison Magee, Chair of the Scotland
Committee of the BIG Lottery Fund said:
“This is a truly innovative project which
has identifed a niche market and created
a tailor made programme for a section of
our society with specialist needs.”
Looking towards the future, the award was
given to the promising company because
of the vision that “Specialisterne UK will help
transform the quality of life for those taken on board…by
capitalising on skills identifed amongst selected individu-
als living with an Autistic Spectrum Disorder.”
Recognizing the importance of integrating the millions
of people autism into the workforce, the BIG Lottery Fund
has made autism a priority by investing its funds into Spe-
cialisterne UK.
Software Company Specialisterne
awarded funds for investing in people
with autism
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Center Based Services
Shema Kolainu provides quality Applied
Behavior Analysis (ABA) and therapy
programs for children with autism.

Pre-School Age 3-5 &
School-Age Age 5-11
Conferences, workshops, teacher and
parent training programs.
Cari ng for chi l dren
wi th auti sm. . .
Home based programs
Early Intervention (EI) Program- Birth to 3 years old.
• Evaluations • Occupational Therapy • Special Instruction
• Speech Therapy • Physical Therapy • Service Coordination

Special Education Itinerant Teacher (SEIT) Program
- An individualized educational program for children ages 3-5.
CPSE Evaluations - Ages 3-5.
Medicaid Service Coordination - Ages 3-21.
Residential Habilitation Program (Res Hab) - Ages 3-21
Shema Kolainu
4302 New Utrecht Ave
Brooklyn, NY 11219

BULK RATE
U.S. POSTAGE
PAID
PERMIT # 701
BROOKLYN, NY

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