March 2013 Newsletter

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OFFICERS President:

Paul Rossi 410-647-6171 268 Shakespeare Drive Severna Park, MD 21146

BOARD OF DIRECTORS Dennis Fila Joan Gardner Ginny Gross Stan Baker Allyn Mellits

Vice President Stan Novack 410-255-6802 OSTOMY ADVISERS: Secretary Jamie Darr 410-987-0094 Treasurer Lyn Rowell 410-672-6983 Irene Repka, RN, BS, CWOCN Youth Rally Coordinator Melissa Blood Michelle Perkins, RN, BS. Webmaster: Janice Winters DIRECTOR EMIRITUS - Mary Lou Thomas, RN, BA, CWOCN

We’re on the Web! www.annearundelostomy.com
Volume 39 Number 5 March 2013

March 7, 2013 April 4, 2013

* *

Lisa Kahn - Convatec Irene Repka, RN, BS, CWOCN – C- Diff Presentation

Note: Regular meetings are held on the first Thursday of each month, at 7:30pm on the 7th floor of the new Health Science Building. Check with the 7th floor desk for the room number. See overleaf for directions. If AA County Schools are closed due to inclement weather, there will be no meeting.

A WORD OF THANKS for their constant support of our Chapter to: The American Cancer Society, especially the office in Gambrills, for essential help with our newsletter; and Anne Arundel Medical Center for providing rooms for our regular meetings and special events. We appreciate their support and assistance. NOTICES The display, description, demonstration or distribution of products at our meetings, or in the newsletter, or by the recommendation of a member of our Association, does not constitute an endorsement of that product by the AACOA. CONSULT YOUR DOCTOR or ET Nurse before using any products or methods published in the AACO newsletter or suggested by a member of the AACOA. Your own doctor or ET nurse provides medical advice that is best for you. Items from this newsletter may be reprinted in other ostomy newsletters, provided proper credit is given as to source of material.

OSTOMY ADVISORS FOR STOMA HELP We are fortunate to have available the services of Enterostomal Therapy Nurses serving our local area: To consult with one of them, a physician’s referral is necessary and a fee will be charged. Call for an appointment. BALTIMORE WASHINGTON HOSPITAL Carol Canada RN, BSN, CWOCN 410-787-4578 ANNE ARUNDEL MEDICAL CENTER Michelle Perkins, RN, BS Kelly Heffron, BSN, CWOCN 443-481-5508

Private Consultants
Joan M. Sullivan, MAS, RN, CNA, CWOCN 410-932-7312

Directions to Health Science Building Anne Arundel Medical Center
From Annapolis and the Eastern Shore: Take Route 50 West to Jennifer Road exit (Exit 23A). Go through the traffic light onto Medical Parkway. From Baltimore: Take I-97 South to Route 50 East, to Parole exit (Exit 23). Turn right onto West Street then right onto Jennifer Road. Go approximately one mile, and turn left at traffic light onto Medical Parkway. From Washington DC: Take Route 50 East to Parole exit (Exit 23). Turn right onto West Street then right onto Jennifer Road. Go approximately one mile, and turn left at traffic light onto Medical Parkway. Alternate to I-97 from Crofton/Odenton area – Take 178 South through Crownsville towards Annapolis. Turn left on Bestgate Road and then right on Medical Parkway. REMEMBER!!! The entrance to the medical center is FROM THE SECOND FLOOR OF THE PARKING GARAGE. Once inside the building you will be on its second floor – take the elevators inside up to the 7th floor. When leaving, take the elevator the second floor and go through the doors onto the 2nd floor of the parking garage.

For
 those
 serving
 on
 the
 board,
 the
 next
  board
 meeting
 is
 March
 18th
 at
 7:30pm
 

TRANSPORTATION TO MONTHLY MEETINGS Some are not able to attend the monthly meetings because of transportation issues. Others may be able to give someone a ride. SO if you need help with transportation OR if you can help with transportation, please let us know by emailing us at [email protected]. Please put “MEETING TRANSPORTATION” in the subject line. Please include your street address and city in your email – we are trying to match up individuals with others in the same area. We cannot promise to be able to get you a ride, but we will try.

Live Well

v

Live Independent

v

Live Active

In the cold winter season when freezing temperatures and snow storms flourish, the media portrays the weather as a virtual enemy. Staying home bound seems like a safe alternative. Yet, static inactivity and cold days can lead to the winter blues and other physical health problems. Life challenges, as small as they may be, appear like mountains. Pushing through is a requirement, but help is around you. I encourage you during this winter season to reach out to one another, your local support groups, your local health professionals and to lean on those who have resources for your physical and emotional well being.

Colleen Simpson
BSN, RN, CWON

At Austin Pharmacy & Medical Supplies, we are there for you! With a phone call or a visit, caring health professionals and educated specialists will help you branch into wellness with local resource referrals and products to get you back into your active lifestyle. So, gain independence and merge back into a happier and healthier life, regardless of cold weather, media craze, or whatever you’re faced with in the end of the day. Most importantly, remember those around you can help, and we care. Best regards,

Colleen Simpson, BSN RN CWON Wound Ostomy and Continence Nurse Consultant Austin Pharmacy & Medical Supplies

TOWSON
6729 York Road Baltimore, MD 21212 Phone: 410-377-5300 Fax: 410-377-5302

Toll Free:

1-855-AUSTMED

HUNT VALLEY
10757 York Road Cockeysville, MD 21030 Phone: 410-773-0300 Fax: 410-773-0301

M-F 9:00 a.m. - 6:00 p.m. Sat 9:00 a.m. - 2:00 p.m.

March 2013

The Rambling Rosebud

PRESIDENT’S
 MESSAGE
  Our association runs on a small budget. We don't have a lot of expenses; the biggest expense is postage for the newsletter. We make donations either in money or printing supplies to the local American Cancer Society that graciously allows us the use of their copier to print the newsletter. We donate to the Friends of Ostomates by sending them money to help with shipping costs of sending donated ostomy supplies to those who truly need them. We sponsor a youth to help defray the costs of sending them to the Ostomy Youth Rally. We also help defray the cost of members attending the United Ostomy Associations of America annual meeting. Those are our major expenses. Believe it or not, I do NOT get a salary as President, in case that's why you are wondering why you see me month after month! My point in all this is that it would help us greatly if you remembered us in your will. Any amount would be appreciated. Also, although difficult to think about, is putting our association in an obituary notice for people to send a contribution in the name of the ostomate who has passed. Such a remembrance will help us continue the good work we all do. Thank you. Paul
 

Urinary Discharge Can Affect Skin and Kidneys
Via Contra Cost (CA)) & S Brevard Fl

Urostomates have to be especially careful about cleanliness. Bacteria from stale urine can cause white, gritty deposits on the skin and stoma, which can be irritating, abrading the skin like sand paper. Fresh urine doesn’t usually hurt the skin unless it is trapped in contact with it. If urine collects under the pouch, the bacteria multiply rapidly. This skin should be completely cleansed and dried before applying tapes, barriers, faceplates, etc. Empty the pouch frequently. Keep the urine acid (through diet) to prevent gritty deposits. A quarter cup of half water and half white vinegar solution sloshed in the pouch around the stoma will dissolve any deposits. Solutions for cleaning and disinfecting urostomy equipment can be obtained from your appliance dealer.

4

March 2013

The Rambling Rosebud Many ostomates water and snow ski. They only take normal, common sense steps when active. The newer ostomy equipment with advanced adhesives works pretty well on its own. Specialty stores have specific swimming wear for ostomates, which are higher cut, with a pocket for the pouch. In summary, have fun, do the sports you like. You do need to use some common sense, protect your stoma from injury, then go out and do it. Common intestinal reactions to certain foods in the ostomate Gas Beans, beer, broccoli, Brussels sprouts, cabbage, carbonated beverages, cauliflower, onions Apple peels, cabbage, celery, coconut, corn, dried fruit, mushrooms, nuts, pineapple, popcorn, seeds, skins from fruits, skins from vegetables

SPORTS AFTER OSTOMY SURGERY
from Swiss Ostomy Website; via S. Brevard (FL) Ostomy Newsletter & Stillwater-Ponca City (OK) Ostomy Outlook

There is no reason to reduce sports activity just because one has had ostomy surgery, though there are some common sense considerations that should be utilized: A tight and strongly-sticking pouch is absolutely necessary. There is no need to do anything extraordinary. One should try to keep one's pouch reasonably empty. One must consider the physical shape one is in, plus the day-to-day ostomy management. Avoid sports with high risk of injury, such as boxing. If you insist on contact sports, and some still do, protect yourself. There are manufacturers of special stoma guards which will permit you to do just about anything. Do not allow the stoma to keep you from doing any activities you wish. Of course, if you are 120 years old, you may want to limit your sports activities to those your body would ordinarily tolerate without a stoma. A sport that stresses your abdominal muscles too much should be avoided, unless you have slowly and deliberately, under the guidance of a knowledgeable professional, built up these muscles to the point where you can easily perform the skills necessary without undue exertion. When playing ball games such as tennis, you may want to cover or in some way protect your stoma. There are vendors advertising in the Ostomy Quarterly that sell stoma caps and stoma guards. Check your pouch after a strong physical effort. A change of pouch may be necessary due to perspiration and movement. We all get less wear time due to any kind of physical activity. It is better to change the pouch after an exciting, active day than relaxing, yet not putting a strain on your equipment. Before you go swimming, make sure your pouch is secure and empty. There is no reason that having an ostomy should keep you from swimming. Some people may need to take extra steps, though. If your skin is oily, tape your pouch with pink tape, rather than taking a chance.

Incomplete digestion

Applesauce, bananas, cheese, Thickened stool pasta, rice, peanut butter (creamy), potato (without skin), tapioca Thinned stool Increased odor Reduced odor Fried foods, grape juice, high-sugar foods, prune juice, spicy foods Alcohol, asparagus, eggs, fish, garlic, onions Buttermilk, cranberry juice, parsley, yogurt

Source: American Dietetic Association, 2011, United Ostomy Associations of America, 2011

Via www.mayoclinic.com/health/ostomy Controlling urine odor in the Urostomate Increases odor Decreases odor Asparagus, fish, garlic, onions Eight to 10 glasses of water, cranberry juice or other noncaffeinated beverages daily

Source: United Ostomy Associations of America, 2011

5

March 2013

The Rambling Rosebud to pass the blocked area. Severe bloating, abdominal pain, vomiting and constipation are symptoms of blockage and present a serious situation requiring medical attention and possible immediate surgery to cut the obstructive adhesive bands. Abdominal pain, though, doesn‘t always mean adhesions are blocking the intestines. A frequent cause for such pain is a spasm of muscles responsible for peristalsis, the rhythmic muscular contractions that propel the bolus through the intestines. Muscle spasms in the calf are referred to as a charley horse; spasms in the intestines are essentially the same thing but assume the name irritable intestine or irritable bowel. Even ostomates who function without colons are not immune from painful spasms in the small intestine. An ileostomate may sometimes suffer from pain that can‘t be traced to blockage and may be told that adhesions are responsible; the actual cause may instead be a spasm.

Aging and the Ostomate
Edited by B. Brewer, UOAA Update 3/12

Skin: As we grow older, subtle changes occur in our bodies. The most insidious is our skin. It loses elasticity and becomes thinner and drier, thus becoming prone to wrinkles and irritation. These changes can become real problems for those who must wear a pouch all the time. To prevent leakage as the skin becomes more wrinkled, one should stand up straight when changing the pouch. With one hand, stretch the skin so that it’s tight, and with the other hand attach the pouch (using a mirror may help you see what you’re doing). Bruise: The skin over the entire body tends to bruise more easily and heal more slowly as we age. We need to be more careful when removing a pouch. A skin barrier covering the entire area under the pouch, or a very thin application of a skin-care product may help protect the tender skin. Strength & Agility: Aging may also result in less strength in the hands, arthritis, lessening mobility or pain in the fingers can make it difficult to put together a two-piece pouching system. A one-piece pouch may eliminate the task of stretching a pouch over a faceplate. In short, aging is something we must face. Considering the alternative—it’s not that bad!

Quips you can use
Via Ostomy Support Group of North San Diego

Adhesions & Other Pains that Cramp Your Style
Edited by B. Brewer, UOAA Update May 2012

Adhesions are tough, string-like fibrous bands, often in the small intestine. They may form spontaneously but are more common after surgery, where disturbances caused by tissue manipulation may lead to healing in the form of fibrous tissue, hence adhesions. Some people form them more easily than others. Adhesions may grow to interfere with the normal motion of the intestine, causing a blockage or obstruction, with food, liquid or even air unable

1. Do not argue with an idiot. He will drag you down to his level and beat you with experience. 2. The last thing I want to do is hurt you... But it's still on my list. 3. Light travels faster than sound. This is why some people appear bright until you hear them speak. 4. If I agreed with you, we'd both be wrong. 5. We never really grow up, we only learn how to act in public. 6. War does not determine who is right - only who is left. 7. Knowledge is knowing a tomato is a fruit. Wisdom is not putting it in a fruit salad. 8. Evening news is where they begin with "Good Evening," and then proceed to tell you why it isn't. 9. To steal ideas from one person is plagiarism. To steal from many is research.
6

Anne
 Arundel
 County
 Ostomy
 Association
 
Membership
 Application
 
 
 Please
 Print
  Full
 Name
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 M.I.
  Address:
 _____________________________________________________________________________________________________________________
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 Street
 Address
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
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 Date
 of
 Birth:
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 Gender:
 
 
 
 
 
 
  Email
 Address
 _____________________________________________________________________________________________________________
  Reason
 for
 surgery:
 
 
 
 
 
 ____
 Crohn’s
 
 
 
 
 
 
 
 
 
 
 
 
 ____Ulcerative
 Colitis
 
 
 _____
 Cancer
 
 
 _____
 Other__________________________
  Emergency
 contact
 if
 we
 are
 unable
 to
 reach
 you:
 ______________________________________________________________________
  To
 help
 us
 complete
 our
 records,
 please
 answer
 the
 following:
  What
 type
 of
 surgery
 have
 you
 had?
  ☐
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  ☐
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  ☐
 
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  ☐
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I
 would
 like
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 help
 with
 the
 following
 committee(s)
 or
 activities:
 


 Newsletter
  ☐
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How
 did
 you
 hear
 about
 us?
 

The Anne Arundel County, Maryland, Ostomy Association, Inc. (AACOA) is a non-profit, volunteer-based organization dedicated to providing reassurance and emotional support for people who have had or will have some kind of ostomy surgery, such as a colostomy, ileostomy, urostomy (urinary diversion) or a continent procedure. The goal of the AACOA is to provide moral support, information, and education to people with ostomies and their families and friends. Members receive The Rambling Rosebud newsletter monthly. Please complete the form and send along with your check in the amount of $15 payable to AACOA c/o Stan Baker 958 Fall Ridge Way Gambrills MD 21054-1454 Membership benefits include Monthly meetings Monthly newsletter Support information Social Events
 

Email any comments or questions to [email protected] Please visit our website at www.annearundelostomy.com
 


 


 

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